Wednesday, July 2, 2008

When will someone have an answer?






So at Dylan's 6 month appt the doctor thought we could go until her 9 month check up for the next appt. That made me nervous. We didn't have much weight that we could afford to lose. And 3 months seemed like a long time to not know if we were going in the right direction. So we opted for a 7.5 month check up, which ended up being almost an 8 month check up (can you believe it has been 8 months?!?!). We have had a rough time for about a week now. Dyl hasn't really wanted to eat, which I just attributed to teething. But she is ALWAYS starving. She went back to waking up 2-3 times a night just famished. She would down a bottle in no time flat. We are still eating our normal 50+ ounces a day, and now it is at 24 cal+.


We always start off our appointments with a weight check. That sets the tone for the appointment. I have learned to not have any expectations. It seems when I am thinking everything is going well, we find out it isn't. So back to the weigh in. She had only gained 3 ounces in 3 weeks. Typically babies should be gaining between .5-1 ounce a day. my big concern was that she had just had a 5-6 ounce bottle right before the appointment. So has she even gained anything? (if you get grossed out, skip the next paragraph)


Her poopies are SOOOOOO huge and SOOOOO stinky. And not food stinky. I know what broccoli and pear diapers smell like. This is "something inside of me is rotting" stinky. And she is having frequent and large ones. People actually leave the room gagging when she toots or poops. Poor thing is gonna have a hard time in school!! The stinkiness and the constant change in consistency cues the Dr.'s into 2 things. 1) malabsorption 2) bacterial overgrowth. If you look at the outside of her tummy you can see she is visably larger and dialted on one side versus the other (the side where her jejunum is).


She is still our happy girl. Not as active since she doesn't feel well. And she is sleeping alot more. She isn't AS giggly and playful as normal. But by no means a hard baby. It just gets frustrating that we gain gain gain. And then the brakes go on. This might just be the pattern with her. Which is fine. It just scares us when the doctors start to get concerned. So, we are in a holding pattern right now until all docs can converse and get on the same page. The GI doc is out until early next week. My guess is they are going to want to treat for over-growth. Which I am fine with, but I would like to make sure that is really what we are dealing with so we are not shocking this poor little girls body with any more antibiotics. She has been on it too many times in her life. There is a breath test that can detect overgrowth. We just aren't sure she is viable for it due to her age. I will do everything in my power to make sure we know what we are dealing with before we give her any more meds. She only has so much bacteria in her body, we don't want to kill it all if we don't have to. We all need a certain amount of bacteria to keep our bodies healthy.


I will let you know as soon as we know something. Oh, people have mentioned her metabolism before. As in maybe she has a super fast metabolism and that could explain it. I asked the Dr. is a BMR test was a good idea. And she just said "Ash, lightening doens't strike twice, besides Dylan is developing too well to have metabolism issues". Not sure what that means, but there ya go.


Oh, and Dylan think she is Mogali from the Jungle Book. She is crawling with her toosh straight up in the air and on her hands and feet. Just like Mogali did in the movie. She might have learned it from all those times her Daddy and Uncle Jay watched the movie. Who knows!!


Dyl is such a blessing and such a doll. Thank you for your continued prayers and support!

1 comment:

The O'Neal Family said...

I can't believe how big she is getting, I know she isn't gaining but she is looking so much older by the month. I can't wait for Jalen to get here to play with Dylan. He has been kicking a lot lately and Jason finally got to feel him which was cool, I feel bad that I get to experience it all and he just has to go by what I tell him. What is your schedule like now? I am home fro the summer with online classes so I would love to have you and Dyan over sometime to see the nursery, have lunch and catch up again, just let me know when is good for you :o) Miss ya!
Joely