Replogle is out!!

We will update with the new pictures and tales (or lack there of) of the week a bit later. But in the meantime I just wanted everyone to know that they took out her replogle completely this morning. They couldn't decide yesterday if they were going to remove it or not because it was still outputting neon green, but after multiple surgeons took a look at it the concensus was to remove it and give her a chance without it. So that is where we are! Our little angel is down to just her PICC(sp?) line and leads to dedect heartbeart and respiration. She is currently being rocked to sleep while laying in Daddy's arms and listening to to new "I'm Not There"(Bob Dylan Movie) Soundtrack. What a beautiful sight. I always knew he was going to make a great father, but he blows me away everytime I see him with her! What an amazing man! (He never reads this, so I get to say whatever, he isn't into this mushy stuff!)

Synopsis of the past couple of days!

So in the last update we had said that the doctors had discussed putting Dylan's Replogle to gravity on Thursday. Thursday after her very large throw up she still continued to put out alot of dark green almost black discharge. Friday we went down to Fisherman's Warf but we came in and visited in the morning. She had already filled up her output canister with discharge. And when we returned from the Warf she had filled up another half of a canister. Meema left Friday night on a red-eye, Dylan was sad to see her go. Sat. morning Casey, "Apple" and Grandpa Smith spent the morning together with Dylan before they began their head home to Tucson. Casey and I headed back up to the hospital with Vanessa a bit later. Vanessa spent some time holding Dylan before we took her to the airport to head back to Phoenix. During this visit I let the nurse know that I didn't think the replogle was working correctly, she just kind of chuckled at me. Friday during a visit I noticed that the replogle had no water in it which isn't a good thing, they did put water in it. After we dropped Vanessa off at the airport Casey and Mom went to the local pub to watch the rest of the FSU vs Florida game, I went up to be with Dylan. I walked in and she was curled up asleep with dried black throw up on her forehead, hands, and blanket. I thought I was going to loose it. I told the nurse that she was covered in throw up (same nurse that I told the replogle wasn't working) and she said "oh, lets just change her". So we changed her and the nurse was going to had her off to me when I said, "We never fixed the replogle". She said she didn't know how to so she needed to get another nurse. The replogle drains the goop from Dylan's tummy. It should be constantly moving or clear. Her tube was totally Green and not moving at all. The other nurse came in a noticed how bad of shape it was in and she pulled out the whole line. Dylan then started throwing up EVERYWHERE. I couldn't believe how much throw-up there was. She didn't cry at all, I think that it is because she was so relieved to have all of this junk of her body. I still thought I was going to ninja kick this nurse. What would have happened if I wouldn't have come in? Would Dylan have been covered in dried throw-up for hours? Grrr....Would her replogle have ever started working? Grrr.....The night nurse was one that we love and have had man times, so she took care of everything. I came back that night and spoke with the charge nurse to tell her of my concerns. They understood our concerns and said that they will only place up with high care nurses from here on out. Sunday was a good day, no output from her replogle. Aunt Terri, Uncle Jay, Max and Nadine came up to visit. Dylan was wide awake and happy most of the day. And now we are at Monday! The doctors have chosen to put her replogle to gravity, I think because there was no output yesterday. I think this will be placed back to suction within the next few days, call me a pessimist, but i have seen what has been coming out and the color the past few days. She was grumpy all morning for the nurses and as I went to change her diaper there was a POOPY!!!! My first one!!! Wohoo!!! It looked like bird poop. It was dark green with a little white in it. This was so exciting. And as I was changing it she was still pooping. I think that was why she was crabby. Wouldn't you be if you only pooped once a week? Now that it is out of her system she is happy as a lark! "Mimi" is leaving today for a little while, so she has been holding Dylan most of the morning. All in all not much has been happening. We are in the waiting section of the hospitalization, we are just trying to get Dylan's body to work so that we can feedings started!

Trip to Fisherman's Warf

Family Pictures

Great-Grandpa, Cousin Andrew, Great-Uncle Craig, and Dad!

Great-Grandpa, Uncle Craig, Cousin Andrew, "Apple"

My Big Girl Binky!

Me and My Great-Meema

Boy Does She Love Me!!!

And I LOVE her!

Great-Meema, Mommy and ME!

She sings me my goodnight song!

"Big Daddy", Aunt Lauren, and "Mimi" My Beautiful Aunt Lauren

"Mimi" and Tia Vanessa

I love her!

What We are Thankful For!

We are Thankful for so many things this year. It has been such an overwhelming yet AMAZING year. It started off with the Wedding of our dreams. We couldn't have asked for a more beautiful and special start to the year. We were able to celebrate with our closest friends and family that traveled from both near and far. And those that were not able to make it were there in spirit. And we ended the year with the birth of our daughter. What a way to complete the year. She has been such an amazing addition to our family and we are so thankful that she is on the path to being healthy. This leads us to the next thing that we are thankful for, our friends. Our friends have been such an amazing support throughout the past couple of months. I do not think that we could have made it through the pregnancy without their support. So a special Thank You to Vanessa, Jaime, Rachel, The Flanders, Mo,The Abels, The Martins, The Leggets, The entire JCrew family, Marc, Vickie, The Ierley's, Lauren, Laura, The Milligan's, The Cirell's, Paul, The Encinas', The Plimley's, Mark, Jean, Steve, The Osterhoudts, The Goblets, The Whitney's, The Henderson's, The Hastings, The Kennemer's, Meredith, The Mozur's, The O'Neals, All of the OPA girls, The Sheehey's, The Thalheimer's, The Peterson's, The Hanley's, Miles, Rob, All of the Casey's Navy guys (The drunks in Japan), Sliwo J, Ray-Ray the Mexican, Lt. Srogi, Chief Hazlewood, The Salvagio's, The Goad's, The Luke's, The Weaver's, All of our High School friends that have supported us, The Rochon's, The Garcia's, All the friends from St. Paul's, All of the Motorola Gang, The Banakis', The Weber's, Amanda, Rebecca, KC and anyone else we forgot!
We have had the most support from our family. They have truly been our backbone through this all. My parents have sacrificed so much for us. I feel so fortunate to have a mom and dad love me, my husband and my daughter like they do. From all of the research that they assisted in, to driving me out to California, to going to appointments to me, to helping with the dream babyshower, to the decorating of Dylan's room. They have been an invaluable support. Casey's parents have been so amazing also, they attended appointments with me, came up to Phoenix to help me with house work, listened to me complain, and have just been such a great sense of love. I feel so fortunate to have married into such a great family. My Brothers and Sisters we great in making sure that their pregnant sister was surviving!!! Chris and Amanda were so great with their calls to check up on how things were going. It was so nice to have Amanda to go through this pregnancy with, it made things so much easier. My grandmother, Meema, coming out to see her first great-granddaughter meant more than I can ever express. All of My Aunt's and Uncle's that have called and emailed to check in on us have meant so much. Casey's Grandfather has been grandpa, every great grandbabies dream! All of the Martinsen's, Hilliard's, and Terry's, and Marilyn, thank you for all of your love! The Smith's get a special thank you. Thank you for taking me into your family. Jay, Terri, and Max, I could not have asked for a more loving home to live in for the past few months, thank you for making Dylan and I one of yours. From Feivel, to Joey "the shoe eating bandit", to chocolate chip cookie making, I had so much fun during the hardest time, thank you! Aunt Sandy and Aunt Darlene, thank you for being the best God Mother and Great God Mother that Dylan could ever have. She is such a lucky girl!
We decided a few days ago to have Dylan Baptized today. Becuase we are so thankful for this little Angel we thought that Baptizing her on Thanksgiving Day was only appropriate. This way every year on Thanksgiving we can say and extra prayer for Dylan's amazing fight and recovery!!! So this morning we had a Priest from St. John of God in San Francisco come up and Baptize Dylan. She wore the gown that every grandchild in my family has worn. She had a rough morning, but as soon as the Baptism started she was so alert and scerene. It was such a beautiful ceremony, she was wrapped in a white blanket, had the cutest wooden cross bracelet on and just sat in my lap. Meema was the Proxy for the GodParents, Vanessa, "Mimi", "Apple", Grandpa Smith and Casey were all in attendence. We all made the sign of the cross of her forehead and the ceremony was complete. This has been a great day thus far and we are currently at Jay and Terri's house about to EAT!!!! Then back up to the hospital to spend the night with our little Pixie!

Thank You Everyone and Thank You God!